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Scott Frasard's avatar

You make a very important point - one that I share. For me, "supports" are those specific things that one needs to live their life. It may mean intensive therapies or helping with activities of daily living (ADLs; bathing, toileting, feeding, etc.) while to others it may mean a simple adjustment (and everything in between).

I wrote a couple LinkedIn articles about this (see: https://www.linkedin.com/pulse/rethinking-support-autistic-people-scott-frasard-%25C3%25A2%25C3%25BB-phd/?trackingId=jIEolcp9RQ%2BiPAd2HNf5Ew%3D%3D) and address this issue head-on. I give specific examples of my support needs, which include:

- Time and space to recharge before/after social engagements

- Time and space for me to engage in my routines

- Time and space for me to ask for clarification about messages/instructions

- Time and space for me to info dump

- Time and space for me to process information

- Time and space for me to address problematic sensory issues

- Time and space for me to answer your questions to completeness as I define it

- Scheduling appointments for me

- Accompany me to appointments as needed

- Intervening/speaking on my behalf when I’m struggling to or cannot communicate

- IT troubleshooting

- Making some decisions for me

- Answering my exact question when asked

- Allowing me to stim

- Providing short, succinct, and sometimes written instructions

- Being direct

- Going to a different public place (restaurant) if the selected one is too loud/crowded

- Earplugs when I am in unavoidably loud places

- Adjusting recipes to meet my limited palate

- Reducing the temperature at night so I can sleep

- A room free of any light at night so I can sleep

For me, I believe that identifying what support someone needs to live their life as they want/need to live is more important than identifying what "box" they fit in based on how others see them (e.g., autistic).

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Catastrophe M Thorn's avatar

It’s great that you are experiencing success in the world. Unfortunately, the world’s systems are the problem and merely being able to tread water within them isn’t a definition of real success. Dismantling the oppressive capitalist structure and building an egalitarian, equitable structure for society is the only way to begin repairing all the damage humanity has wrought upon Self and Planet.

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